All of Us Against PKU
The Ayora foundation is, once again, pleased to announce its successful partnership with a variety of non-profit organizations and government agencies to raise awareness to the rare disease named PKU (Phenylketonuria). With organizations such as Majmae al Khair (مجمع الخير), a Moroccan American charity program under the leadership of Rachida Boukarou, as well as the famous Bab Rayan organization. SOS PKU Maroc was also a participating factor in the initiative and acted as a key entity in the realization of this organized effort. The camp also saw the participation of Hany Elharraq whom we have worked with in the past and continue to unify with against greater causes. There were also many more participants for which you can see the details below:
The camp, which took place on August 6th, 2022, was marked with the presence of various press outlets, as well as interested parties and organizing associations. Whereas Ayora sponsored the food and beverages to host the event (Breakfast, lunch and dinner, and Tea Session) that saw the presence of 50 families with PKU relatives and 30 PKU patients. In order to host as many incomers as possible, lodging was made available, free of charge, to all the visitors who have traveled from distant regions of the country to attend the event. The camp program consisted of a fun environment with a DJ, painting sessions, Interactive games for children, a fun kitchen workshop, and delicious treats. This camp was not only to increase the awareness and shed light on the disease but to also initiate charitable contributions from benefactors in both the US and Morocco, an effort made possible with the publication of the following SNRT news segment and press release for which you should find the links below.
We are always very thankful for the participants, volunteers and followers who have helped us, and continue helping us today, with fulfilling our vision. Our core beliefs remain the heart of the operation, and we would like to remain on this path to impact the maximum amount of people.
Per recent statistics, PKU is an illness affecting one out of 23930 children at birth. According to Rarediseases.org, infants with PKU typically appear normal at birth. With early screening and dietary treatment, affected individuals may never show symptoms of PKU. However, untreated newborns not diagnosed in the first days of life may be weak and feed poorly. Other symptoms may include vomiting, irritability, and/or a red skin rash with small pimples. Developmental delay may be obvious at several months of age. The average IQ of untreated children is usually less than 50. Intellectual disability in PKU is a direct result of elevated levels of phenylalanine in the brain which causes the destruction of the fatty covering (myelin) of individual nerve fibers. It can also cause depression by reducing brain levels of dopamine and serotonin (neurotransmitters).
The camp, which took place on August 6th, 2022, was marked with the presence of various press outlets, as well as interested parties and organizing associations. Whereas Ayora sponsored the food and beverages to host the event (Breakfast, lunch and dinner, and Tea Session) that saw the presence of 50 families with PKU relatives and 30 PKU patients. The event program consisted of a fun environment with a DJ, painting sessions, Interactive games for children, a fun kitchen workshop, and delicious treats. This camp was not only to increase the awareness and shed light on the disease but to also initiate charitable contributions from benefactors in both the US and Morocco, an effort made possible with the publication of the following SNRT news segment and press release for which you should find the links below.
Per recent statistics, PKU is an illness affecting one out of 23930 children at birth. According to Rarediseases.org, infants with PKU typically appear normal at birth. With early screening and dietary treatment, affected individuals may never show symptoms of PKU. However, untreated newborns not diagnosed in the first days of life may be weak and feed poorly. Other symptoms may include vomiting, irritability, and/or a red skin rash with small pimples. Developmental delay may be obvious at several months of age. The average IQ of untreated children is usually less than 50. Intellectual disability in PKU is a direct result of elevated levels of phenylalanine in the brain which causes the destruction of the fatty covering (myelin) of individual nerve fibers. It can also cause depression by reducing brain levels of dopamine and serotonin (neurotransmitters).
The camp, which took place on August 6th, 2022, was marked with the presence of various press outlets, as well as interested parties and organizing associations. Whereas Ayora sponsored the food and beverages to host the event (Breakfast, lunch and dinner, and Tea Session) that saw the presence of 50 families with PKU relatives and 30 PKU patients. The event program consisted of a fun environment with a DJ, painting sessions, Interactive games for children, a fun kitchen workshop, and delicious treats. This camp was not only to increase the awareness and shed light on the disease but to also initiate charitable contributions from benefactors in both the US and Morocco, an effort made possible with the publication of the following SNRT news segment and press release for which you should find the links below.
We are always very thankful for the participants, volunteers and followers who have helped us, and continue helping us today, with fulfilling our vision. Our core beliefs remain the heart of the operation, and we would like to remain on this path to impact the maximum amount of people.
